My Medical Journey: From Birth Defects to Self-Healing
I have often found it difficult to discuss my medical history; the subject can be depressing, and the complexity is often misunderstood. However, after decades of chronic pain, fatigue, and misdiagnoses, I want to record these events. My hope is to help others navigate similar “convoluted” conditions and to better understand my own journey through time.
Early Complications and Surgical Fallout
My health issues began at birth with a diaphragmatic hiatus hernia, a rare birth defect where the stomach protrudes into the chest cavity. As a child, I suffered from severe pain and regurgitation. At age 21, a barium meal X-ray confirmed the severity of the condition, leading to an experimental surgery. Unlike modern procedures, surgeons performed a frontal opening, removed the stomach to cut a portion away, and reconnected it to a surgically tightened esophagus.
I deeply regret this operation. Recovery took over a year, and it created a cascade of new problems:
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Restricted Diet: My ability to ingest food narrowed significantly.
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Supertaster Sensitivity: I have always been a “supertaster,” making vegetables, spices, and red meat intolerable since infancy.
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Physical Decline: I suffered from intense morning pain, constipation, and extreme weight loss—dropping to 100 lbs despite being six feet tall.
Adrenal Struggles and Medication Side Effects
The fatigue was eventually linked to dangerously low blood pressure. In 1987, an endocrinologist diagnosed me with ACTH deficiency under stress (partial secondary adrenal insufficiency). I was prescribed cortisone acetate for a year without monitoring. The high dosage led to emotional instability and permanent damage, including osteoporosis, a known contraindication of long-term cortisone use.
By the late 1990s, tests showed my hiatus hernia had reopened. However, due to extensive scar tissue from the first operation, further surgery is impossible. For the pain, I was prescribed Carafate, but like most medications, it triggered a systemic reaction: fatigue, nausea, and low body temperature.
The Cycle of Misdiagnosis
For years, I faced “medical gaslighting.” Doctors often dismissed my symptoms as psychological or suggested I was “avoiding vegetables.” I rejected these assessments; my symptoms occurred even when I was unaware I had consumed a trigger substance.
My sensitivity makes conventional treatment dangerous. In 2008, a routine colonoscopy resulted in a week-long hospitalization. The laxatives failed, and the air used during the procedure caused a blockage in my ileum (the junction of the upper and lower intestines).
Pancreatic and Digestive Management
My current physician investigated malabsorption and pancreatic function. I briefly tried Pancrease, but after the FDA standardized formulations, the replacement (Creon) caused a white-coated tongue and nausea.
I now manage my digestion through natural enzymes:
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Papaya and Pineapple: Taken before meals to aid protein digestion.
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Specific Enzymes: High in Protease and Lipase, but low in Amylase (which causes the white tongue).
New Diagnoses: Colitis and Ankylosing Spondylitis
A blood test eventually confirmed inflammatory (ulcerative) colitis, which explained my joint pain, skin rashes, and kidney stones. I learned that fiber—often recommended for others—actually worsens my inflammation.
In 2010, I was diagnosed with Ankylosing Spondylitis (AS), a chronic disease where the spinal joints attempt to fuse. Because I am highly sensitive to TNF blockers and Remicade (which carries a risk of tuberculosis—a concern since my BCG vaccination causes false-positive TB tests), I manage AS through:
The Turning Point: Spiritual and Alternative Healing
Exhausted by clinical failures, I explored alternative paths. In Colorado, I worked with a shaman named Kat. This experience shifted my perception and included a “spiritual web” placed over my esophagus, which significantly reduced my daily abdominal pain.
Later, I used the Dolores Cannon method of hypnosis to address the progression of AS. These shifts, combined with a focus on being less “rigid and judgmental,” helped clear systemic blockages and reduced the emotional tension that hindered my healing.
Modern Management and the Vagus Nerve
In 2018, a splinter injury triggered a full adrenal crisis, mimicking my 1987 diagnostic tests. This led me to a sympathetic endocrinologist who validated my partial adrenal insufficiency. I now manage this with:
I have come to realize that my issues likely stem from Vagus nerve damage sustained during my original hernia surgery. Current research suggests the Vagus nerve mediates the hypothalamic–pituitary–adrenal axis; damage here explains my chronic illnesses, allergies, and adrenal fluctuations.
Current Status
Since September 2020, I have utilized hypno-meditation to initiate significant self-healing. While I still work closely with a caring GP, I have become my own best advocate. Today, I am relatively drug-free and better equipped to identify the nuances between an adrenal crisis and hyponatremia (low salt) events.